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In Need Of Some Prayers For My Daddy...

kdc's Avatar

Anyone who wants to send a prayer for my Dad, it would be greatly appreciated. After a fall on Friday night, I called 911 to help get him up. He hit his back on his bed when he fell, but he told the guys he was ok and refused to go to the hospital. By Sunday morning when he got up, he was in a lot of pain and the bruises started to show.  I helped him to his chair and he couldn't even sit back in it because he was in pain every time he inhaled. I called 911 and had him taken the the ER, which is only about five minutes from us. We were in the ER from just after 9am until they admitted him and got him a room at 5pm.  When the ER doctor did some lab work and scans, they said there were no injuries from the fall, but they found he has Pneumonia. They said he will be in the hospital for several days  and will have antibiotics to clear it up. The scan also showed his abdominal aneurysm has grown since he last had that checked. So, I made an appointment for him at the Cleveland Clinic, where he has a doctor there that was monitoring his aneurysm. He has an appointment set for the 21st.

The Social Worker came in and talked with us today about my Dad getting some therapy in a  skilled rehab nursing facility after he is released from the hospital.  The therapy will be to help him with his balance and strengthen his legs.  He had a little therapy for it about two years ago and it made a big difference. I was surprised that my Dad agreed to it. So, I'm checking out some places they gave me on a list. I found one that looks nice...online...but, I'm going to take a ride there and ask them for a tour. I want to make sure to check everything out before making a decision.   They say things happen for a reason, so maybe the fall happened to find the Pneumonia, aneurysm and for him to get the therapy he needs to help him.

So, I ask for your prayers for my Dad. He had just had his 90th Birthday on October 28th and he's the bestest Dad ever!

Thanks!

David .
Saletta .
Saletta .
Jill Kelly
Marlene gainey
Dana Dimantova
Julia M
David Heath
Adam W.
Mark Bartlett
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williamj's Avatargold

You got em Kathleen !

Kathleen C
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letm31n's Avatar

So sorry for your Dads fall. Sending prayers for a speedy recovery. God bless.

Kathleen C
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steev's Avatar

sayin prayers

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steev's Avatar

sayin prayers

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betsykaufman's Avatarg8_badge

Prayers and Love to you and your Dad honey! My Dad is the same age. And like you---my Dad means the world to me. So, I know first hand the worry and the fear you're going thru. 

Your Daddy is so lucky to have you for a daughter Kathleen. I'm so glad you're with him!  Great picture! You're both in my heart! XxooX

Kathleen C
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jdowney9000's Avatar

I'm able to add him to the prayer chain list for our local church website if you like:

http://www.stjohnstmaryqc.org/prayer-request

Much prayers

Kathleen C
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kdc's Avatar

Thank you everyone, they are much appreciated.

Thanks Jacob for your offer to add him to your prayer chain. 

My Dad's name is Anthony Christopher.

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joekur's Avatar

Prayers for a speedy recovery for your dad floating your direction, Kathleen.

Kathleen C
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marinko55's Avatar

God please Bless Kathleen Dads in any way to help him to be healthy and all family in Jesus Name-Amen.

Kathleen C
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matt's Avataren_staff_badge

Prayers sent your way :-)

Kathleen C
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paulortega's Avatargold

Prayers!

Kathleen C
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caldean's Avatar

Kathleen, prayers for your dad.

Kathleen C
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chipnjaa's Avatar

Kathleen, I wish all the best to your family. I've been there and it's hard when the roles are reversed from the time the photo above was taken (the big strong guy who always took care of you now needs your care). It's the circle of love and that's a pretty strong power for good in the world. You're a power for good in this community and you have our full support! 

Kathleen C
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magurn's Avatar

Thoughts and prayers to you and your family Kathleen!

Kathleen C
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kdc's Avatar

Thank you everyone. Starting off the day seeing all the love and prayers from our EN family is a good way to starting the day. Love to each and every one of you.  I'm gonna make some brownies this morning to take to him!

David Heath
Elizabeth Crouch
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chappy75's Avatar

Oh I am so sorry Kathleen. Prayers and best wishes... If he is anything like you, he's a fighter and he has a cheerful disposition. Good thing you are so close to good doctors...  

Kathleen C
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inovate's Avataree_badge

Kathleen,

God bless you and your dad. I know how much he means to you.

May he get better from the Pneumonia, and may the therapy work fast and well so he can be back at home with you soon.

Aloha Charlie

Elizabeth Crouch
Kathleen C
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speedbump's Avatar

Thoughts and Prayers sent your way Kathleen that your Dad might get back on his feet and back home soon!

Kathleen C
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wittyinventor's Avatargold

Bless his heart.  Praying and wishing him a speedy recovery.  Blessings to you and your family as well Kathleen.

Kathleen C
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sunto's Avatar

Wishing your dad a speedy recovery Kathleen.

Kathleen C
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countofmontecristo's Avatar

Oh, ouch I just saw this.

  Now we all know why our parents always worried about US when we were little ones and took a spill.  Sending good karma and sincere prayers your dad's way now! 

Kathleen C
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betzy's Avatarg8_badge

Kathleen,  

You and your bestest daddy are lifted up in prayer -|-

You are a wonderful daughter and are doing the exact right thing by cautiously checking out the nursing homes before admitting your dad.

Hugs sweet friend

Kathleen C
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kdc's Avatar

Thanks for all the prayers. The rehab nursing facility will just be temporary while he gets some strength back in his legs.

Today, they had him sitting up in a chair. His back pain seems much better, but it still hurts some when he coughs. His kidney doctor was in and said his kidney is stable...which is what we want because it will never get better, it will either stay stable or get weaker. It's been stable now for the past 5 years that I've been having him to the doctor to check it every four months.

He was less confused today. I think his confusion yesterday (thinking he was there for three days, when he was only admitted the day before) was just from the long, long day we had in the ER on Sunday. He had a good solid nap for an hour and a half while I was there today. The nurse came in and was changing the monitor he has in the front pocket of his hospital gown and IV and he slept right through it. It seems he must be getting used to the noises around him that he can now sleep through them. He would have slept longer, but I had to wake him when his dinner came. He felt bad that I was there to visit and he fell asleep. I told him not to worry about it, he is there to get some rest and get better and that I was keeping quiet (that doesn't happen much!) so I didn't wake him.  He slept with the TV remote pointed at the TV all that time...luckily, the program I watch at that time was on the channel he dozed off on. I just kept an eye on his hand, so he didn't accidentally push the button for the nurse.

No word yet as to when he will be able to be released. I'm sure it's going to be a few more days before his Pneumonia clears up completely.  I didn't get to talk to any of his other doctors because they were in earlier this morning before I got there. And my Dad doesn't know one doctor from the other and when I asked my Dad what they said...he said, 'I don't know what they're talking about, I just shake my head and say ok.' I told him he better know what he's agreeing to or he may come out looking like Bruce/Caitlyn Jenner when they release him.

Thanks again to every one of you for your prayers. You all have a special place in my heart.

Chip
Matt Spangard
James Chapman
Michelle Sartori
Jacob Downey
Charlie Lumsden
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bennyb30's Avatar

My Family is praying for your Dad. Everything will go good. He's a strong man. You don't make it to 90 by not being strong. Stay- FAMILYSTRONG 

Kathleen C
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joseph's Avatar

Kathleen, your Dad is in my prayers.

Kathleen C
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kdc's Avatar

My Dad is getting better each day.  They are ready to move him into a regular room as soon as one is available. His Doctor is happy with his progress. He's being the good patient today, doing his breathing exercise every hour, eating all of his food and the sure sign...joking with the nurses.

Next step, once he is released from the hospital, he will go into a rehab for therapy to strengthen his legs and help with his balance. I have an appointment at noon tomorrow to check out a place. I've found a five star rehab that is only 10 minutes from where we live.

Thanks so much again for all the prayers!  

Kathy Day
David Heath
David .
Archie .
James Chapman
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kimmyk's Avatargold

Oh Kathleen, just saw this. So sorry you're having to go through this... it's hard when the old folks start to decline. Sounds like he is in the best place with you there to watch him.  I hope the facility is to your liking.  They can be deceiving, so I would hang out a bit and watch what all goes on.  You should be able to get a feel for it pretty quickly.  (if it smells like urine, keep looking!)

Prayers for healing and peace as he goes through this ordeal, and I hope the aneurysm is stable. That surgery can be a booger to go through, but they do have less invasive methods now.  We'll pray he can avoid that too.

Love ya girl!  Your Daddy is a lucky man.  :)

Such a sweet pic!

Kathleen C
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sunto's Avatar

Very  happy to hear good  news  about your  dad Kathleen  tell him a Yorkshire  man wishes him a speedy  recovery. 

Kathleen C
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rockwayheath63's Avatar

OK KiddO.. Daily update please. How's it going today?

Kathleen C
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kiskom's Avataree_badge

Kathleen, 

So sorry about your Dad, sending my prayers and well wishes your way. If you have the choice please send your dad to an acute rehab center versus a sub acute rehab. Acute care rehab is more intense and will give him 3hrs of therapy/day. Sub acute rehab are in a nursing home center. They cost less, are less intense, and the patient receives less therapy per/day. Your dad is De-conditioned from the fall, lack of movement , and the pneumonia. He will benefit from the physical therapy. When he goes home if needed  he may also be entitled to home care or out patient therapy. All the best!

Kathleen C
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kdc's Avatar

Thanks for the continued prayers. They transferred him from ICU to a regular room after I left last night. Whoever transferred him didn't take the time to settle him in. When I got there about 1:30, they had him sitting in a chair. One of the two breathing things he is supposed to be using every hour was on the opposite side of his room, in the bag they put his stuff in to transfer him, sitting on the window. Which means, he didn't get to use it  from the time they transferred him last night to 1:30 this afternoon. He had no water picture at all, which means nothing to drink since breakfast. And if that wasn't bad enough...his dentures were still in the cup on his nightstand on the  opposite side from where they had him sitting. Which means, they gave him  his breakfast and lunch to eat without his dentures! I didn't even get my jacket off or sat my purse down before I rang for his RN nurse. I told her what I found when I walked in. I told her, he didn't get his breathing exercise that he's supposed to be doing each hour, he had no water and asked her how they can give him his breakfast and lunch without his dentures. She was upset as well, she said she was already gone for the day when they transferred him last night and he was there when she came this morning. She got his water right away, and I told her it's a good thing he didn't choke trying to eat without his dentures. She said that when patients are transferred, they are to make sure they are settled in, but she has problems with some of them just being dropped off like that. I told my Dad he HAS to tell them when he needs something. I told him to  make sure, to tell them if he needs his dentures before he eats. When he was in ICU, they had 'Dentures' written right on the wall chart next to where they write the type of diet. In this room, their wall chart was dated Thursday November 3, 2012!  I know it's throwback Thursday, but come on people!

Now....for the update. They took him for a chest scan today, but no results yet. They should have some results from it tomorrow. He seems to be getting better each day. I had an  appointment to tour the rehab place. It has a five star rating from Medicare.gov. The facilities are nice, very clean the people (residents) all looked content and greeted the woman that was showing me around, with a smile. She knew all of them by name. It's a small place. I think 47 beds. It's for short term and long term residence and it's also a retirement, assistant living place with ranch houses around it. She showed me the therapy room where they would be helping him with his rehab. They have a community dining room and a smaller more private dinning room for those who need help being fed. They have everything he will need there. He has a choice of a private or semi-private room. His dietitian will meet with me tomorrow to explain his diet for when he returns home. He will be on a Renal Diet.  That's the update for today. 

Chip
Kathy Day
James Chapman
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kdc's Avatar

Thanks Mary... the social worker did tell me he will be getting the 3 hour a day therapy. But, I will double check with the rehab place to make sure. I guess they have to wait to get the information from the hospital before they know exactly what they need to do.

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beszeditz's Avatar

"Lord, just say the Word and he will be healed"

Kathleen C
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kimmyk's Avatargold

So you got there at 1:30, and the day nurse (who probly got there at 7 am) didn't know any of this was going on??  In the morning, call and ask for the Head Nurse for that floor and let her know what happened.  You can also call Administration and let them know.  That's inexcusable.  They are supposed to check on patients every 2 hours at a minimum.  Unless he is on fluid restriction, he should have access to water.  Makes me wonder if he even got his meds or a bath!

Even if the RN isn't in there regularly, they should have aides making rounds. Sorry... this got me riled up.  It's a tough job to handle that many patients, but it's concerning that she knew so little about her patient. I always did a thorough assessment of each patient because I knew some people didn't, and if I was taking over for one of these people, I wanted to know if the patients might be having a new problem.  I worked in acute care, which was a step down unit from ICU, but we had mainly heart and vascular post-surgical patients, and they could go south in a hurry.  There's usually a ton of people on day shift, so someone should have seen that he didn't have his things within reach.  If they are grossly understaffed, this may open Admin's eyes to the problem, because this can be a huge liability for their facility.  I hope he gets better care and starts feeling better soon!

Kathy Day
Kathleen C
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coolschool's Avatar

Kathleen, I haven't been checking in regularly since before Thanksgiving so I just now saw your post. I definitely will keep your dad in my prayers. In my family when someone is in need we also ask for a Brigade of Angels to surround and protect that person. So watch for the angels- I'm sending them his way!

Julia M
Kathleen C
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kdc's Avatar
Thank you Cathie, Michael and Kim. Kim...He was on the ICU floor, but all the signs said, 'Step Down' so I thought it may be an in between type of unit.  With my Dad, he thinks they know what they are doing, so he won't correct them. He will just  let them do whatever. Yesterday, a nurse came in with a drink (before he was transferred) and started to open a straw for him. I had to tell her he was not supposed to be drinking with straws. He's on nectar thickened liquids. I know they have a lot on their mind, so I'm not nasty to them, but I will tell them when I see something that isn't right. They need to know.   He was given a welcome packet in the room he's in now and it says that they will come around every hour to check if they need anything. But, my Dad will tell them everything is fine. I need to be there to tell them, everything is not fine. When he was younger, he had no problem speaking up, but now...he's just too mellow.
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kimmyk's Avatargold

Being in the hospital is rough, esp. for elderly folks. It can be very disorienting, and sometimes you just want to be left alone to sleep and here they all come!  Many people won't disturb a patient that appears to be sleeping.  That gives them an opportunity to check the box that they were there, but then don't have to do anything for that person til the next round.  The staff needs to be more proactive with certain patients - especially when they are new and elderly or disabled, and you have no idea what their personality and abilities are.  Unfortunately, hospitals are often the place for burned-out staff to congregate if management isn't doing their job correctly, and patients are the ones to suffer. 

Maybe put up your own signs in the room stating what he needs or can't have.  That way, they don't have to check the chart to know what's going on with him. Should help to expedite his care.

Kathleen C
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eccentric's Avatar

Prayers submitted..  Keeping all of you (Kathleen & Co) in my heart & soul...

Kathleen C
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jdowney9000's Avatar

Thanks for the updates Kathleen. Keep us in the loop. And we'll keep him in our prayers.

Kathleen C
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coolschool's Avatar

Every patient needs an advocate, Kathleen, and you are doing an excellent job of being one for your dad!

Kathleen C
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kdc's Avatar

My Dad was finally transferred to the Rehab facility today. He was very confused, but I'm hoping that is just because of the change of environment. Otherwise, it is as if he's aged 20 years in one day.  I'm worried about that, but hopeful to see more positive things tomorrow.  

Please, please keep the prayers going for him.

Julia M
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kimmyk's Avatargold

Confusion is not unusual given the circumstances.  Hopefully he will get oriented once he spends a day or so at the new place.  Hang in there...

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chicagoinventor's Avatarg8_badge

Prayers for your Daddy, ,Kathleen. Many of us have been through the struggle of a loved one who resists treatment. Be strong for him.

Julia M
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kdc's Avatar

Thanks Michael. I just signed onto the computer to check about confusion during hospital stays. I'm glad I read your comment first because I didn't know there was an actual name for it. I'm hoping that's all it is.  I'm praying I'll see him returning to his old self again tomorrow. I was just sitting here thinking...it was just one week ago when he fell, and before the fall he was making his own bed every morning, making his coffee and I'd help him make his breakfast. But, I never thought a change like this would take place in one week. Now, he's confused, he doesn't really know where he is. It's just so sad to see. Thanks Daniel and Kim. I little encouragement like that means a lot to me right now. I guess I was just hoping someone would tell me this is normal during a hospital stay.

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kimmyk's Avatargold

A lot of elderly people get confused in the hospital... it's worse if they've had anesthesia.  That's why I was concerned about them leaving him in the chair and not checking on him. I've seen folks do things I never would have thought they were able to due to their physical condition - like leave the room and climb stairs - when we were having to help them out of bed just shortly before.  They often have their meds changed, which can compound problems. They're not sleeping due to the noise and activity, meals are different and at different times, and they're not in familiar surroundings, so very easy for this to happen. 

Take a few things to his new room that will help him feel like home - pictures, blanket, etc - and that can make a difference.  (Just make sure you label his clothes because anything soiled may go in the facility's laundry and get lost or ruined.)  As long as his head scans are clear, he should get back to normal pretty quickly.  It's just hard for everyone else to wait for it to happen.

Kathleen C
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kdc's Avatar

Kim...He never knew that I knew, that every night when he goes to bed he will take my Mom's picture from his dresser and put it on the bed stand next to his bed. Then, in the morning he would put it back on the dresser. He's done this every night since my Mom passed away. (It will be 7 years on the 11th). I don't know why he didn't leave it on the night stand, maybe he just didn't want me to notice. I would never  care that he did that. I just thought it was sweet and sad at the same time. But, since we had the Paramedics take him on Sunday morning, he didn't get to place it back on the dresser. So,today I just said, 'Dad, they allow  you to have family photos and personal belongings here. Do you want me to bring Mom's picture that you have on your night stand?"  And he said, yes. In fact that was the quickest clearest answer I got from him all day.

So, I'll be sure to take that to him tomorrow. They have been married 61 years when she passed away. The photo is one that was taken back in the late 40's or early 50's.

Kim L
David .
Kathy Day
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mykzrock's Avatar

Kathleen,

I've been out of the loop and I'm just reading about this now.  So sorry to hear about your dad and all you've

been going through.   Sending prayers, prayers, prayers your way!!!!  

xxo,

S

Kathleen C
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speedbump's Avatar

Hang in there Kathleen ... I know this makes for some looooooong days. There's lots of  good advice from those in the know in the thread. Also there's the possibility that the Pneumonia itself could be a factor in your daddy's confusion because of the decreased oxygen flow as well as the other factors mentioned. 

My father-in-law had the same symptoms (confused) when he went through a hip replacement at an advanced age a few years ago! We didn't know if we were supposed to pretend to see the train he though he was seeing going by outside or to correct him ... lol

Kathleen C
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kdc's Avatar

You all have given me some comfort with your comments last night. I've never heard of the Sensory Overload for hospital patients. I know my great-nephew gets it because he has Autism. So, knowing now that there's a name for what my Dad is going through, gave me the chance to read up on it last night. You're not only a great community, you're great friends and therapists!  Thanks so much. I'm hoping to see less confusion today, since he finally had one night without all the hospital noises around him. 

Love and Blessings to each and every one of you!

Kathy Day
David Heath
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kdc's Avatar

Update:  Dad was much less confused today. Almost himself again! I was very happy with what I walk in on today. I couldn't wait to go see him at noon. So, I got there at 11am.  They said he ate all of his breakfast. When I went into his

room, he seemed to be doing ok.  His physical therapist came in to introduce himself to us and take a look at my Dad to see what kind of work will be needed to help him. This man is great with my Dad. He's very encouraging and he had my Dad do some exercise lifting his legs, bending them, getting up (with some assistance) and sit on the chair. I noticed the way he was talking with my Dad, that he was kind of checking how his memory is. He mentioned, 'One for the Gipper', then asked my Dad who starred in that movie. Then he started talking football with him, and just getting my Dad comfortable talking with him. He got all the information he needed and will start his therapy on Monday, five days a week. He told my Dad he will have him back to where he was before he went into the hospital a week ago, and even better, so he can return back home.

My Dad still tries to get up when he needs to use the bathroom. He does NOT like the bedpan, but that's understandable because he wants to take care of 'that' business himself. We have to keep telling him he has to wait until his therapists tells him it's ok to go to the bathroom himself, but he has to wait and work with him first. I asked his nurse if they have a bed with rails on them, so he won't try getting up. She said most places doesn't use them anymore because there's been too many choking accidents with them. He has a small grab bar to use to turn in...but, that's not going to stop him from trying to get up. They DO have the sensor alarm on the bed, but I still worry about him.

He ate all of his lunch and dinner. So, today was a better day for him, which made it a better day for me as well. But, he still has a long road for recovery ahead of him. But, he seems to be staying positive. 

Thanks again for all the prayers. Let's see if prayers can bring him home for Christmas!

David Heath
David .
williamj
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kimmyk's Avatargold

That really is sweet about the picture of your Mom.  I'm sure he was happy to have her back next to his side.  I'm happy to hear he's so much better. It should only get better from here!

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sunto's Avatar

I so hope you're dad can be well enough to go home for Christmas. I am really rooting for you both .

Kathleen C
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billward11's Avatarg8_badge

Kathleen,

That's a beautiful story about your Dad and the photo of your Mom. I wish your Dad a speedy recovery. He's fortunate to have someone like you looking out for him.

Kathleen C
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davidpope2002's Avatar

Kathleen...I've been away for several days sorry to hear about you dad, I am praying for you and your dad. 

David Heath
Kathleen C
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janetsideas's Avatar

Praying for your Dads recovery Kathleen.  

Hope they do all tests before going to rehab.

Including a spinal MRI.

Keep tabs on him while he is recovering at the nursing home and I'm sure he will be well on his way to recovery !

Kathleen C
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kdc's Avatar

He started his Physical Therapy this morning. I wasn't there when he had it because I didn't know what time they were going to have it. But, I know he's in good hands with his Therapist, Anthony. Anthony working with Anthony, a good match!   They had him all dressed and they got him a wheelchair today. He had some trouble because he was sliding down in it, so they took him out because he's still doesn't have the strength to pull or push himself up and I didn't want him to end up on the floor. They put him on the bed for the rest of the day. He ate all of his food. The nurse said she sat with him and he shaved himself, using the electric razor I left there for him. So...he was looking handsome once again. He seems to be breathing much better with a lot less congestive rattling. So, hopefully that will continue to improve.

I have to say, I was happy to see the improvement with him today.

David .
Archie .
Kathy Day
williamj
David Heath
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inovate's Avataree_badge

That's great news girl. Prayers and blessings for his continued improvements.

And may he be healthy and home by Christmas, if not sooner.

Kathleen C
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kimmyk's Avatargold

Glad to hear of his progress.  You lose 10% of your strength every day you spend in bed, so no doubt he is weak.  Sounds like he's well on his way to recovery.  Great news!

Kathleen C
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kdc's Avatar

As I sit there with him everyday, I watch the nurses and their aides and I'm noticing what they struggle with everyday. So, naturally, my inventor mind has some wheels turning as I come up with ideas to make things easier for them and their patients. There's so much room for improvement in medical facilities and you can't help but notice them when you're spending so much time just watching around you.

Charlie Lumsden
David .
Chip
Kathy Day
Kim L
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kimmyk's Avatargold

There's a lot of amateur "McGyvers" in the nursing field.

Kathleen C
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kdc's Avatar

I now have people coming up to me in their wheelchairs in the hallway when they see me, asking me to help them with things. I guess they are getting used to seeing me there, they think I work there. I stop and talk to them, I can't just ignore them and walk by.

Michelle Sartori
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kimmyk's Avatargold

They're also lonely.

Kathleen C
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kdc's Avatar

Yes, they are. One of the women had Birthday balloons tied to her wheelchair. I heard the nurses talking to her about

taking her to the dining area for some cake and ice cream. I thought that was nice of them to do.

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jackieorton's Avatar

I'm, new to the forum...Hope all is in prayer mode for your daddy! I too have experienced much the same in years past, so I know your sincerity in helping your father! God bless you  :)

Charlie Lumsden
Kathleen C
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They have discontinued using some medication on my Dad and  I got an updated list today and he will be taken off some of some more medication later this week. So, that's good news. They've taken him from having to use a lift to transport him from bed to chair Thursday night and he is now being transferred using his walker with two assistants...so, that's more good news.  He starts getting restless in the afternoon, I'm sure it's from being bored and since today was like a spring day, I took him outside in a wheelchair and took him around the grounds then we just sat outside for awhile so he didn't have to be stuck looking at four walls all day.  I took him his iPad because when he's home, he plays solitaire and likes to play with some jigsaw puzzles I downloaded for him...but, he hasn't been wanting to use his iPad yet. He only played with it for a little while one day last week. I'm going to take him a REAL deck of cards and maybe I can get him to play with those.

He's making progress with his therapy, but he still has a lot of work to do before he will be ready to come home. So, please continue the prayers...they're so much appreciated.

David Heath
Michelle Sartori
williamj
Chip
David .
Mark Bartlett
Joe Kurtenbach
Jacob Downey
Kathy Day
Charlie Lumsden
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Good to hear he's making progress.  I've been wondering about him.  Hopefully they're getting him up several times a day so he can keep his strength up.

Kathleen C
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I usually get there in time for his therapy right after his lunch. So, I like to sit in and watch how they work with him. Plus, that will help me to learn how to work with him after he comes home too. (He will have a therapist doing home visits to work more with him once he comes home).  Today, they had him work a little on the set of stairs. He was only doing the one bottom step, up then back down, but that's what he needs to work on before he is released. They asked me what his main problems were. I told him the steps, but also his upper strength because he needs to use his arms to help push himself up from the chair. Though he has a lift chair at home, he has trouble if he sits in a regular chair at the kitchen table, or always in waiting rooms at Doctor offices.  So, they worked on his arms, his legs and they gave him a grabber to teach him  how to use it to put on his pants while sitting down. (He fell twice here at home because he tries to change his clothes while standing, then he loses his balance).  They had a pair of huge shorts for him to put on over his regular pants, which was hard for him. It would have been easier without the regular pants...but, being in a room with women, taking off his pants wasn't an option. The therapist asked him, 'How do you put your pants on at home?" and he said, "One leg at a time!"...LOL...great to see his sense of humor again.

He's showing improvement everyday. He's staying awake and more alert than he did before. I took a deck of cards for him to play and we played a few games. I know he gets bored there. I'm trying to think of ways to keep him busy to pass the time quicker for him. I took him outside for a little while again.

We have a meeting set up where the staff will get together with us and go over all his progress so far. We'll meet with the nurses, doctor's assistant, dietitian, therapist and whoever else is involved with his recovery.

The therapist asked what the plan is for his return home. I told her I would love to get him back home for Christmas. She said, 'We still have a lot of work to do then'...I know they do, but I'm keeping hopeful for that goal.

Please keep the prayers going...we can certainly feel them and see them being answered.

Kathy Day
David .
Joe Kurtenbach
Charlie Lumsden
Jacob Downey
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inovate's Avataree_badge

Kathleen,

You are a great daughter, a great friend and a down-right/upright angel for so many here.  I know with you on his side he will have no choice , but to get better soon. Bless you and your dad thru the holidays.

Warmest aloha my friend

Charlie

Kathleen C
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Kathleen, I believe you mentioned doing things to help keep him keep focused and alert... Ask him to help you with your inventing. Ask him how things work and how he would make things work.

Funny things about dads, they'll do way more for their daughters than they will for themselves. Helping you would be higher up on his priority list than the rehab.

As always, nothing but the best for you and your dad.

Kathleen C
Kim L
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jdowney9000's Avatar

Thanks for the update Kathleen. Also, tell your dad that I sit down to put my pants on. Yep. Both legs at once. Then both socks at once. Shwoop, spin, yernk, ready!

Kathleen C
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dljinnovations's Avatargold

Sorry I'm just not seeing this.  I will be praying for your Dad Kathleen.

Kathleen C
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coolschool's Avatar

Kathleen, you are such a good daughter and a good person! Yes, prayers are continuing from this front.

Kathleen C
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barbarafun's Avatar

God bless! Prayers your way!

Kathleen C
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toolman911965's Avatar

You got it.  Cleveland clinic is awesome,  he is in good hands there. 

Kathleen C
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He only  has one Doctor at the Cleveland Clinic for his aneurysm. His appointment was supposed to be tomorrow, but I had to cancel it. He's been in a rehab for two weeks now. As soon as we get him out of there, I'll reschedule this appointment with the Cleveland Clinic. I'm still keeping hope for a release by Christmas.

Thanks for everyone's prayers, encouragement and concern.

Charlie Lumsden
David .
Mark Bartlett
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joekur's Avatar

Bumping up the prayers for Christmas.  Hope your dad is continuing to improve, Kathleen.

Kathy Day
David .
Kathleen C
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Thank you Joe.  My Dad didn't have a very good start to his day. When I got there after lunch, I found he was in bed. That is strange because they always have him dressed and up in his chair. Right away I knew something was wrong. I asked him why he was still in bed and he said he's been in bed. I asked if he had breakfast and lunch yet and he said yes, he had lunch in bed. That was odd too, because he isn't supposed to eat in bed, his orders to the aides is for him to eat at the table in the dining area. I asked him if something happened that he wasn't telling me. He said no. Then I asked if he wanted to sit in his chair and he told me he did. Just as I started to ring for a nurse to assist him. One of the nurses came in and two others followed. I knew then, something had happened, because they were right there as soon as I got there and I didn't even get my jacket off. 

They told me he had an 'incident' this morning while doing his therapy. I thought they were going to tell me he fell. But, they said the therapist had him on the stairs, and the color just drained out of him and he had passed out. They said his blood pressure went up and they were getting ready to have him sent to the hospital, but then he quickly came out of it. They talked as if it was just a quick thing, but I don't know how long he had blacked out if they were going to take him to the hospital. None of them were there and I never did see the therapist today to question it.  They said his color came back to normal, and they think it may be just a one time thing and maybe he got disoriented on the stairs because the ceiling is right there and with his height, he may have thought he was higher up than he really was. They said they can't say for sure, because a number of things could have caused it. But, I still want some answers, not knowing what caused it isn't going to help know if it can happen again.

They dressed him again and got him into a wheelchair. He was perfectly alert, but they said he didn't tell me what happened because it happened so fast, he isn't aware of it.  His speech was much more clear, he looked good, I took him outside for awhile. Came in and gave him the lunch I brought him because he won't eat their food. Which, I also told them he isn't eating enough, and that could also have been a reason he passed out. I took him some Regitoni with my homemade sauce and some good stinky cheese. I was surprised he ate every bite. That pleased me a lot because he hasn't been eating. He even wanted to go back outside for awhile before dinner time, so I took him for more air. 

I'm going to try to get his own doctor to go there and check him out because the doctor at that place only comes in once a month. His assistant just checks the heart and blood pressure once a week.

My plan WAS to try to bring him home for Christmas day then take him back in the evening. But, yesterday, they had me take the car around and wanted to see how he did getting in and out of the car. He didn't do well enough for me to bring him home, and I still have concern about him getting up the steps here. He's doing very well, on the stairs in therapy...except for the incident today. 

I have the two therapists scheduled for a home visit on Wednesday. We will bring my Dad with us, so they can assess the apartment and check what he will need when he comes home, and see how he gets around. But, they said if he isn't able to get up the stairs, then the assessment will end there and they won't even enter the apartment. So, I'm hoping by Wednesday, he will be doing well enough to get up these stairs. After their assessment, they will determine what they still need to work on with him, then depending how it goes, they can release him in maybe a week after that.

Needless to say, I'm hopeful for a miracle for him. But, it just doesn't feel like Christmas this year. I really didn't want him having to have Christmas there. But, I told them not to give him lunch because I'm going to make his Christmas meal for him and bring it there and share Christmas together with him.  Besides, I need a good meal too...I've lost 20 pounds since he was admitted to the hospital. I can afford to lose the weight, but he can't, he needs all the energy he can get so he can get well and come back home.

From the bottom of my heart, thank you all for your continued prayers. They really do mean so much to us. Bless every one of you and your families.

williamj
David .
Kathy Day
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Oh dear, that's too bad. Have they been changing his meds around? So many things could cause that, so it may be difficult to figure out unless it happens again. Hopefully getting his appetite up will help out.  Sorry he didn't get to come home, but better to have him safe.  Merry Christmas Kathleen!  I hope you both have a good day tomorrow.  :)

Kathleen C
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Sorry Kim, I went to click on reply, but clicked on 'Report this post' by mistake. 

The latest change on his meds, is that they've now discontinued giving him the blood thinner shots .

on Friday.

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sunto's Avatar

I know it doesn't feel like Christmas  but make the most of it with your dad Kathleen .

Sharon lost her dad last Christmas  so on this side of the pond  it feels strange and  just

No fun so believe me I am thinking a lot about you and your dad at this time . Best wishes 

Dave and Sharon

Kathleen C
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kimmyk's Avatargold

Uhhh, so am I in trouble?  lol  I don't know what happens when a post gets reported...

Kathleen C
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Kim, EN has a very special corner for those who get their posts reported.  ; /  LoL

Kim L
Kathleen C
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inovate's Avataree_badge

Kathleen, I'm sorry you didn't get to bring your dad home yet. I am sure with your track record, that you not only give him a Merry Christmas, but also brighten up others Christmas day at the care facility.

Bless you and your day 

Kathleen C
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Update:

My plans were to cook on Christmas Eve when I got home from visiting my Dad, and take him a good home cooked Christmas meal to him. Sadly, that plan didn't happen either.

At 8:15 Christmas morning the rehab called and told me they were taking my Dad to the hospital. They were taking him to a different hospital than the one he's been going to...because it was closer. That's when I knew it had to be serious because his own hospital in nearby as well. 

He was submitted to the hospital on Christmas morning and has been on life support. When they took him in, the doctor told me he could pass at any minute. That was on Christmas morning. I have been by his side ever since, and spending the nights next to him. I prayed and prayed for a miracle. He's made it through Christmas and today is the first day he is showing some positive signs where they can wean him from some of the many IVs they've had him on and stable enough to have some scans done. He's had a blood transfusion, but the doctors said he has so much going on right now. He was diagnosed with lung cancer, the aneurysm is a great concern, he had blood in his stools, he only has one kidney and said he may end up on dialysis. But, I told them, he's a fighter and he has beaten the odds before and he will beat them again. I just sit by him and send positive thoughts to him and pray all day and all night. They have him sedated, but he will follow their commands when asked to squeeze their hand or open his eyes. Yesterday, he opened his eyes and just stared at me, and I just held his hand and and told him I love him a hundred times over.

I have to say, this hospital seems to be much, much better than the hospital he used to go to, so I am thankful they decided to take him to this one instead.

Any time I do get a little bit of encouraged news, someone else comes in with other news to knock it down again. I thought it was good news when they told me his blood pressure and blood count was better. Then I found out, that is because of all the medicine they have him hooked up to and not his body that is making the improvements. My emotions have been up and down so many times. I've been staying next to him all night and probably only dozed off maybe an hour in the last two nights. I just now came home to grab a shower and change my clothes while they take him for the scans, then I'll be going back to the hospital in a few minutes.

One of the doctors came in yesterday and told me, they will see how he does in the next few days, but that I need to be prepared to make a final decision for him if he isn't able to stabilize and show improvements on it's own.  Thankfully, as I said above, he is showing improvement with his HH and blood pressure. They said they will take the ventilator off later today to test and see how he does. 

My love to all of you for your continued prayers.

Jacob Downey
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letm31n's Avatar

My heart is breaking for you Kathleen. Im so sorry your Dads health has declined. I will continue to pray that your Dad pulls through this difficult time. God bless you and all you do. 

Kathleen C
David .
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keeztan's Avatargold

Prayers for you and your Family, Kathleen. Hoping for good news and recovery.

Kathleen C
David .
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Kathleen, the tears in my heart are for you. I know first hand the turmoil that you are going through. I am cheering both him and you on. Stay strong, and know that we here are holding you and your father are close to our hearts.

Kathleen C
David .
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My prayers are here for you Kathleen and that your father "daddy" gets better... when reading your post (I feel every essence of your endurance) as I have been where you are and am an only child so making these decisions and walking the road alone is somewhat challenging. i am glad to know you have this space here to "share" what your going through. GOD BLESS you and YOUR DADDY SO MUCH, HUGS from an unknown new insider. I have taken a moment of silence for you both. Keep up your attentiveness- you are an awesome person. 

Kathleen C
Kathy Day
David .
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Thanks for the update Kathleen.  I'm glad that you feel comfortable enough to open your heart to us during this most difficult time, and I'm glad that your EN buddies can serve as a source of comfort and encouragment to you.  You and your father are in my prayers (and a lot of other peoples as well).  I'm sure that he is most glad to have you at his side to hold his hand and hear you tell him that you love him.

Julia M
Kathleen C
David .
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Thankyou everyone. 

After I posted the update yesterday and went back to see my Dad, they had just brought him back from the scans.

They've already removed the ventilator and just watched to see the results. They disconnected all the IVs except for the antibiotics. His blood pressure kept stable and his vitals were good. His eyes were wide open and he was alert. His voice was very low, but that is expected. He knew I was his daughter and he knew my name and since it's the first time he's was coming off from being sedated, I told him I have been with him and staying the night with him. He said, 'I know babe, you're always here for me.' and he squeezed my hand.  I wanted to keep him talking as he became more alert, so his voice would get stronger. So, we watched some shows on Food Network and he was telling me who he thought would win and who should go home. He even bet me $50...of course, he won!  He was wide awake and my niece (his oldest Granddaughter) and her son (his Great Grandson who is able to be home for the holidays from the Marines), came to visit lastnight.  He knew who they were and talked a little with them. His blood pressure and vitals were still stable. He was very restless during the night. I took my chair over to sit next to his bed and held his hand to try to calm and relax him a little. At about 3am he went to sleep and I got about two  hours sleep too.

Still praying everything will be ok with him. This morning the kidney doctor came in and told me his kidney is doing fine, the same as it's always been and he won't need any dialysis. So that was good news first thing this morning.  Then, another doctor came in and said the worst is behind him (but, we still have to check about the lung cancer) and the throat specialist that does the therapy for swallowing will be in to see him so we can get him on some food today and something to drink. And, he said the physical therapist will be in to see him as well.  The throat specialist said he does need his liquids thickened, but it won't be a permanent issue. She will work with him then he should be able to go back to his regular eating habits and not need the liquids thickened. She will set up to watch how he swallows with xrays to determine where the problem is.  His physical therapist got him up and into a chair today for about an hour. He kept sliding down, so we had him put back on the bed. I know he wasn't comfortable on that chair because it's the same chair I've been sleeping in.  They brought him some food for lunch today and he ate some but not all. But, that's ok because at least he is able to sit up and eat. 

So, those were the updates so far today. 

The nurse that took care of him the night before last night came in yesterday and looked in and saw my Dad with out all the machines and IVs on him and I heard her ask the other nurse, 'Awww, where did Tony go? What happened to Tony?"  When the nurse told her that IS Tony, she couldn't believe the turn around over night. She thought something happened to him and they had someone else in that room. His other nurse told him on Sunday that she was going to be off until Tuesday. She said she really wanted to work today (Monday) just to see him. I have not doubt if he keeps this up she will be really surprised when she comes in tomorrow.  

I'm still very concerned about the rectal bleeding. But, they have to wait until he is able to have an colonoscopy  done to check that out.  When they helped him off the chair, blood came out onto the floor. It shocked me because I thought the bleeding had stopped when they didn't see any in his stool yesterday. But, it was a dark brownish red, which is why they think it may be old blood. So, I'm still praying that things will continue to improve for him. I'm going to stay with him again tonight and when I see he is resting enough during the night, then I'll start coming back home to sleep and visit with him during the day. I'm hoping to see him less restless tonight. It may have been from just coming off the sedatives yesterday, as well.

You are all so very special and I thank each of you, you're all so amazing!

Julia M
Joe Kurtenbach
David .
Jacob Downey
David Heath
Kathy Day
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joseph's Avatar

Kathleen,

It Only Shows That God Is In Control. He Can Heal The Ones That Are Sick And Bring The Dead Back To Life, But Most Of All He Answers Knee Mail And Prayers 24 - 7.

David Heath
Kim L
Kathleen C
Kathy Day
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betzy's Avatarg8_badge

Continued prayers for your daddy Kathleen!

David Heath
Kathleen C
David .
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dljinnovations's Avatargold

Great to hear the positive update Kathleen.  We will keep praying.

David Heath
Kathleen C
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He had a rough night, being confused and hardly slept at all. I thought I would try and come home and sleep at home tonight and see how he does without me being there. I don't know. ...  Now, they just told me the doctor recommends he put into an extended care facility. I came right out and asked if they are talking about a nursing home because that's NOT something I want for him. They said it's an in between of a hospital and rehab. I told them I need to check it out first and won't give them an answer right here and now. I can't just give a yes or no, I have to just settle down and think for five minutes. I don't even know what to think. I'm running  on empty as is and the poor guy is going to be even more confused with being put into another place. 

On the up side, the doctor said his aneurysm has NOT changed and it is not 7 points like the Parma Hospital said it was. Parma Hospital mis-read it two years ago and that's why I took him to the Cleveland Clinic instead and they were the ones that said the hospital is mis-reading the scans...now, they did it again. I didn't take him there for a scan, but they just found it when the scanned him from when he fell. It's actually a 5 point something in size, which is what it was two years ago. He's looking much better and talking more. But to see him so restless is heartbreaking. He gets the TV remote and just keeps pushing buttons over and over. Last night he kept taking the sheet off and on, off and on, off and on for over an hour. He's never done any of this before he went to the hospital.  I don't know what it's going to do to him if he goes into another place...then...he still has to go to rehab after that.  I guess I'll stay with him again tonight, I just got the charger I ordered for his iPad (Someone at the rehab place stole the one he had, good thing they didn't know his iPad was there too) and I can take it with me and research the place tonight. I'll go check that other place out tomorrow.  

The last two days they told me and anyone who entered his room, that we had to start sterilizing and use a mask, gloves and a gown to go to  his room until some lab work came back, they were checking for MRSA. They got the lab results back and said he didn't have it...so, we don't have to dress in protection garb anymore. 

I pray that Jesus helps me make all the right decisions that will bring my Dad back home. I thank Jesus for the  miracle he has already shown with his progress and that any more changes we see are positive ones.  Amen.

The doctor and nurses are all amazed with the turn around he's had.  My Dad has been showing his sense of humor and his stubbornness. Sometimes, I think my being there is holding him back, but it's hard for me not to be there. That's why I was going to come home tonight...but, I think I need to be there one more night.  Come to think about it, maybe it's me that needs to be with him, more than him needing me there.  We'll see how things go tonight.

Elizabeth Crouch
David Heath
Jacob Downey
Kathy Day
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dljinnovations's Avatargold

Hang in there Kathleen.  I know you want to be there for your Dad, but you have to take care of yourself too.  I certainly can't and won't tell you what to do, but you will know what to do, and you will have peace with it.

Kathleen C
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Oh Kathleen!  So sorry I just saw the updates... life's been kinda crazy lately.  I'm happy he is stabilized.  The restlessness is often a sign of inadequate oxygenation, and is probably exacerbated by the blood loss.  Hopefully they are monitoring his O2 sats.  With his inactivity (and the cancer), he is at a higher risk of pneumonia. His Incentive Spirometer will help out.  Continued prayers for you both.  It really takes a toll being at the hospital with a loved one. Take care.

Kathleen C
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jdowney9000's Avatar

Your desire to spend time with your father is logical Kathleen. For it is you who doesn't know what life will be like without him. He knows you will be fine. And in that he is likely o.k. with your coming and going. Since you don't know if your last visit will be your last, you possibly feel your time with your father is dwindling. Such is the case with all. The difference here being the comparison of the limited moments with your father to the other things you spend your time on. Showers? who needs 'em! Dad time is more important. I feel I'm trailing. Where is my coherency today? Has this made you feel any better yet? I really am at a loss of words. Back to praying...

Kathleen C
David Heath
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rockwayheath63's Avatar

Keep talking to The Father, through The Son Jesus, by the power of The Holy Spirit. God is listening.

The Way

The Truth

The Life

Prayers

Julia M
Elizabeth Crouch
Kathleen C
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williamj's Avatargold

What Crittie said.

Kathleen C
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inovate's Avataree_badge

True Kathleen, You really have to take care of yourself first now, to show your dad how strong his little girl is. He needs to see that.

I will pray for your well being, as it must take all you have.

Love, blessings and thoughts of health for you and your dad.

Charlie

David .
Kathleen C
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marinko55's Avatar

God bless you daddy in any way in Jesus name Amen Marinko

Kathleen C
Jacob Downey
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joekur's Avatar

Continued prayers.

Kathleen C
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sunto's Avatar

Wishing you and your Dad a happy new year lots of love from across the pond 

Dave & Sharon

Kathleen C
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inovate's Avataree_badge

Kathleen, haven't seen you here for a few days. Hoping and praying that you and your dad are well.

Blessings

Kathleen C
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betzy's Avatarg8_badge

Dear Kathleen,

My continued prayers are with you and your dad.  I'm so sorry that you have to go through all of this.  You sure are a loving and compassionate daughter.  What would your daddy do without you!

It's OK to stay close by his side as long as you need to.  Rest when you can because you need to be strong, too. 

Thinking of you and praying for you.

Love, Lizzy

Little Roy sends you a big hug!!!

Kathleen C
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Many thanks again. 

They want to send him to a LTAC facility. I'm not wanting to send him to the one they keep pushing on us. I'm thinking they must get a big kickback for recommending them.  I've found one that I feel better about, and will find out tomorrow if they will be transferring him there. They said they have to check if his condition qualifies to go to the one I chose for him and if not, they said they would send him to the one I didn't want or to a nursing home. That is NOT their choice!  It's our choice!  If he doesn't qualify, I will have him brought home and have a home care nurse for him. Yes, they are still pushing it!  If he qualifies for one, why would he not qualify for the others on the list? It's all about money with them and Medicare, they don't care about the person.

I've still been staying with him. Last night was the first night he had where he wasn't restless all night.  The night before, he was trying to unplug the EKG wires, he removed the BP cup, then he doesn't remember doing any of it the next day. I know he must be miserable laying there day and night, I wish I knew what to do to help him.

I'm sure his VA rep would have suggestions...I just need the time to go through everything to check. I'll take his VA papers with me this time so I can check into it. It's hard when I'm there and not here at home at my own computer. I just stopped in now to pay some bills and grab a shower.  I would have given an update sooner, since I have his iPad at the hospital with me, but I didn't have my passwords with me. I'm taking them with me this time.

He's off everything except some antibiotics and breathing treatments. He's looking much better and is more alert during the day. They're not going to do any test to find out where the bleeding was coming from because they don't feel he would be strong enough yet and they said since it's old blood, they are not as concerned as they would be if it was new blood. It would still be nice to know what it was from, but I understand them not wanting to take chances. His kidney is functioning good and stable. His lab work has been good, they are doing another lab on him today. He just needs to clear the fluid from his throat/lungs, but he won't cough it up. They have been using a suction tube to help clear it for him.

Thanks again, and keep those prayers coming.

Dana Dimantova
Jacob Downey
David .
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Thanks for taking the time to update Kathleen I am sure many Ener's will be happy to hear from you . As others have said you need to look after yourself too this is so important . love from across the pond.

Dana Dimantova
Kathleen C
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While on my way back here to the hospital, I realized they only have my Dad on an antibiotic  and breathing treatments.  The rehab he was at before he came to this hospital had him on both of those too...so, I'm thinking,if that is all they are going to be doing at a  LTAC facility, then why not just return him to his own rehab where he is familiar with the staff and was already making progress with his therapy?   I called and talked with them, but I have to wait until the admissions woman comes in tomorrow. I asked my Dad what he thought of all this and he agreed he'd rather go back to his rehab place and continue his therapy. 

We don't deal with any VAHospitals because of previous experience he's had. But, we have a VA rep that will help us get whatever help we need and give us contacts.

Crittie, your experience just broke my heart. No one should be treated like that or have to go through what you and your Mom went through.

Jacob Downey
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kimmyk's Avatargold

Glad you checked in with us.  Sounds like he's making progress.  Prayers will continue... take care!

Kathleen C
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marinko55's Avatar

God Bless your dad in any way in Jesus name Amen Marinko

Kathleen C
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mykzrock's Avatar

Sending more prayers your way..

Kathleen C
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letm31n's Avatar

Praying for you guys Kathleen. Keep the faith!

Kathleen C
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speedbump's Avatar

Hang in there Kathleen! I still have you and your Daddy on my prayer list. It sounds like you're making well informed decisions. I have no doubt that you'll do all that is humanly possible .... you should find great comfort in that.

Kathleen C
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dljinnovations's Avatargold

Continuing in prayer Kathleen.

Kathleen C
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danalyn's Avatar

Praying for your father sweetie and you for being strong and loyal to him. :) God bless you both and I ask Lord to continue working with your dad with a successful recovery!

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kdc's Avatar

My Dad was finally released from the hospital today and returned to the rehab where he was before, to continue his therapy.  They are still talking about hospice, but I'm going to wait and see how his rehab goes first. In the mean time, I will check out some places, so if the time comes and I would need to make that decision, I will be ready and not rushed.

Prayers to my Dad for successful rehab so I can bring him back home with me, where he belongs.

Tonight, I will be sleeping in my own bed for the first time since he was admitted on Christmas. I'm looking forward to a

comfy sleep and to finally take off this bra so my twins can breathe!!!

Kim L
David .
Joe Kurtenbach
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inovate's Avataree_badge

Great job girl! Well done:) Sleep well

David .
Kathleen C
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williamj's Avatargold

Great news Kathleen. Go get some much deserved rest and tell the twins goodnight for me. ; )  LoL

David .
Kathleen C
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kimmyk's Avatargold

Happy to hear he's been released; I know that is a big relief! 

Kathleen C
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kdc's Avatar

I'm back at the hospital again with my Dad.  The rehab sent him back while I was there, but I agreed with them that he needed to be brought back.  The rehab didn't have much success using the suction machine on him, in fact it even stopped working at one point. His vitals were good, he was responding, but very tired. We brought him into the ER at about seven o'clock last evening, it is now going on 5am and he is sound asleep and here I am, still wide awake. We will see what the Doctor says when he sees him in the morning.

David Heath
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allig's Avatarg8_badge

So sorry to hear about your dad, Kathleen, and sorry I haven't been by sooner to see this and offer my prayers earlier.  I am especially sympathetic to your situation as my own father passed away at the end of July, which is what sparked me to go back to college for a new career path (nursing)… which is, in turn, why I've been absented from the forums as of late.  Praying for healing and guidance for the doctors who are treating him.

God bless.

David .
Kathleen C
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letm31n's Avatar

Sorry to hear your dad is back in the hospital Kathleen. He is in good hands. Please try and get yourself some rest. God Bless.

Kathleen C
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chappy75's Avatar

Sorry to hear about your dad Kathleen. Sounds like he has a great daughter by his side. He is in our prayers. Best wishes and get some rest, you deserve it.

David .
Kathleen C
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arava21's Avatar

I am new to Edison Nation and am glad to help anyone that I can. Kathleen - I am sending your Dad blessings and positive thoughts, you sound like you have a Great Dad and he also has a Great Daughter. So to you both many deseving blessings and I am only a key board away. GOD Bless. Marie Rava

Kathleen C
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kimmyk's Avatargold

Well rats... that's rough for him to have to go back. I hope they will get him back on track pronto. Take care Kathleen. Let me know if I can help.

Kathleen C
David .
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jdowney9000's Avatar

Agreed Kim; rats. Dirty rats. So as to say; "Drats!"

Kathleen! We need to invent a better suction machine!

Kathleen C
David Heath
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enigmamusement's Avatargold

If he likes margarine butter on wholemeal bread sandwiches for breakfast then try mixing lemon juice with the butter with a fork. Lemon is bitter but the bitterness disappears when mixed with a small amount of butter each time. Google 'lemon health benefits' and believe that it is a superfood .;*;,.

Idea Buyer
Kathleen C
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williamj's Avatargold

Hey Kathleen, just touching base. How's your dad doing ???  And just as important... how are you doing ???

Kathleen C
Marlene gainey
Idea Buyer
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dljinnovations's Avatargold

Continued prayers you and your Dad Kathleen.

Kathleen C
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joekur's Avatar

What Derrick said.

Kathleen C
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mykzrock's Avatar

Kathleen - Sending more prayers out to you and your Dad.   

  

Kathleen C
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kdc's Avatar

Thanks again everyone.  My Dad was just released from the hospital yesterday, after telling us for the last three days he was going to be released, only to find out he wasn't.  They insisted on him going to the LTAC facillty that I didn't want him going to. I told them he would not qualify to be accepted because that place is for those with more critical care condition. But told them if that was the ONLY option, I would give them a chance and if I didn't like it for him, I would find him another place. The next day when he was going to be released, they said that place wasn't taking him because he didn't qualify' I knew that, why didn't they?  Sunday was a horrible day for me, I was being pulled in more directions than I ever new existed, all at the same time.  After they said they could release him to the rehab where I had him...when it came time to discharge him, the rehab said they wouldn't take him because they didn't feel they had the needed staff and wasn't equipped for his condition. So, he was ready to be released, and nowhere to be released to.  I told them I needed time to find the right place and that I wasn't going to be pressured into just putting him anywhere just because they were going to release him. Then a rep from Hospice came to talk with me, she was very nice, very informed and answered a lot of my questions. At the same time the social worker was calling on my phone and the social worker from the hospital was waiting to talk with me. I took my time with the Hospice rep, because that is the route we will have to take in the future. The social worker wanted to know where I wanted him released to and I told her I needed some time to at least check some out. They gave me a list of places and I checked on my Dad's iPad I had at the hospital. I found a place that had very good reviews and a four star rating. It seemed to be just up the street from the hospital. So, I asked the social worker about that place. She said it was a very good place and some of the nurses from the hospital is now working there. I was surprised when she pointed the place out to me, which was straight up the street across from the hospital. I told her I would go over there and meet with them and check out the place.

As some of you know, I get lost ALL THE TIME!  Sure enough, even after she pointed the place out to me, out the window, I still pulled into the wrong parking lot and circled around a few time before realizing I was in the wrong place. But, I toured the place and was impressed. They have a nursing staff there day and night, they have great therapy for his rehab.  So, I told the social worker I wanted him to go there. She faxed his medical papers there to see if they would accept him, and they did. But, they didn't have a room available until the next day. We ended up staying at the hospital one more night, then they released him yesterday afternoon to the new rehab. 

Today, I met with the Physical and Occupational therapists, the dietitian, the respiratory nurse and others. They have better food there, he ate all of his dinner. He's tired of course, but he seems to be adjusting to the place ok. 

The plan is to get him rehabbed to where he  can walk, using his walker so he can be a little more independent like he was before going to the hospital then bring him home.  They agree with that, but they also said his condition will weaken him and they don't know if he will benefit from therapy because he's weaker now than he was before. So, if he shows any improvement with therapy, we will be ok...other wise, they will discontinue the therapy and then they are talking Hospice for him.    

Your prayers mean the world to us...and I love every one of you!

Kathy Day
Alli G
Julia M
Jacob Downey
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kimmyk's Avatargold

Wow! Sounds like you've both been going through the wringer.  Hope this place works out for him. It will take a long time for him to recover his strength, unfortunately. Time and age have not been on his side, besides his other issues.  Hang in there and we'll do our part in the prayer department. Get some rest sweet girl. Night

Kathleen C
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eccentric's Avatar

I am so sorry Kathleen.... I have been so busy with work .. I had no idea of this thread..... though I am not a religious nut on the outside......  I am a firm believer inside..    I am saying prayers for you and your loved ones..  feel free to pm me or shoot a hug whenever you need it!!  :P

Kathleen C
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jdowney9000's Avatar

Give your dad a big ol' hug for me. And give yourself one too, cause you deserve it.

Kathleen C
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letm31n's Avatar

Thank you for the update Kathleen and continued prayers for you both. Sending hugs and love your way! 

Kathleen C
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sunto's Avatar

You can't beat An happy ending

Love from across the pond.

Kathleen C
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kdc's Avatar

We had a conference meeting with the staff on Thursday. They went over the plan for my Dad and gave me a report on his progress.  The therapist said he is progressing and they are pleased with his results.  They are getting him out of bed and getting him to walk a little with assistance. They said he has the most trouble  with the first twelve inches of raising up from the seated position, but once they get him past that point, they can feel he has the strength to lift himself the rest of the way and able to do some walking.  That was very encouraging news to me because when I get here around noon until about 7or 8pm everyday, I only see him sitting in a wheelchair or laying in bed.  I don't see how he is doing when they work with him because they do his therapy earlier in the mornings.   His speech/swallow therapist said his is doing great with his throat and swallowing exercises and will soon go from honey thick liquids to the nectar thick and maybe soon he will no longer have to be on the mechanical  soft diet. I'm usually here when that therapist works with him. His occupational therapist is working with him one his personal hygiene and dressing himself, which is what he always did on his own at home, but since being in the hospital and rehabs since the end of November, he has become dependent on someone doing it for him.  

MY plan for him is to get his therapy then take him back home. 

He still has a lot of work ahead of him, but we are taking it one day at a time and as long as each day shows positive progress, that is all we can ask and hope for.

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jdowney9000's Avatar

Remind your dad that he has one chance to be the oldest person in the guiness book of world records; and that he shouldn't give up on that opportunity at such a young age.

Mark Bartlett
Kathleen C
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dljinnovations's Avatargold

Keep on keepin on Kathleen. I'm sure your dad appreciates everything you do to ensure that he gets good care.  We will continue to support you in prayer.

Kathleen C
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kdc's Avatar

Jacob, I always  remember when I was a youngin' , my Dad saying he wouldn't want to live past 65 years. When I think about it now, I figure he was about 40 when he said that.  I'm glad he's changed his mind!

Thanks Derrick, prayers are always very much appreciated!

Jacob Downey
David .
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kdc's Avatar

Just about everyday, someone comes in to my Dad's room and asks a few questions.

Today, a woman came in and asked:

Her: What are three things you are the most thankful for?

Dad: Being alive.

Her: Well, that's good, what else?

Dad (looking over at me):  My daughter.

Her: Oh, ok and what is the third thing you are thankful for?

Dad (looking over at me again): My daughter. 

Her:  Awwwwwwwwww.

Like Meatloaf said, two out of three ain't bad!

Alli G
Elizabeth Crouch
David .
williamj
Joe Kurtenbach
Jacob Downey
Kathy Day
Charlie Lumsden
Kim L
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letm31n's Avatar

Thats great Kathleen! You both are so blessed to have each other :)

Kathleen C
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inovate's Avataree_badge

Awww Kathleen that's a nice story. Thanks we were ready for one:)

Bless you and your dad. Much Aloha,

 Charlie

David .
Kathleen C
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williamj's Avatargold

Haven't heard from Kathleen in a bit, sure hope her and her daddy are okay.

Kathy Day
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jdowney9000's Avatar

Williamj, I think she might be here:

https://www.edisonnation.com/forums/other/topic...

Juess guessin'

Kathy Day
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kdc's Avatar

I am home again. Saturday morning at 7:15 I got a call from the rehab telling me they were taking my Dad to the hospital in about 45 mintues. I asked why they were waiting 45 minutes if it was an emergency. They said, they were going to take him as an emergency, but they got his stable and will be transporting him (I guess instead of 911, the rehab is right across the street from the hospital). His blood pressure and oxygen levels were low. 

I made it to the ER before they did. The woman in ER looked at my Dad and said, 'He looks fine to me, do you want us to send him back to the rehab or we can keep him overnight if you want." I told her I wanted him to be checked out and stay to make sure he was ok. Well, that overnight ended up being 4 days. The doctor was concerned about the pneumonia again and said he can treat if if he stays another day or two. So, I told him yes. I stayed to watch over him every day and night from Saturday morning until they released him back to the rehab this evening.  It's so hard for me to leave him, especially at night because that's when he starts pulling on IVs and his oxygen tube while he is half asleep and doesn't realize he's doing it. I thought maybe the nurses would be bothered with me staying with him, but my main concern is him. They told me they appreciate me staying with him because it makes their job easier. They really are great nurses there, not only did they take good care of my Dad, they were also checking in on me to see if I need anything, if I was comfortable. I remember the last time he went in on Christmas day, we were still there on New Years' Eve and the nurses offered to make me a plate of snacks from their New Years Eve  trays they had for those who had to work that night.

Anyway,  he is back in rehab now and hopefully things will start looking up for him...he sure needs a break, that's for sure. 

Thank you for your concern, WilliamJ...and everyone!

Elizabeth Crouch
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williamj's Avatargold

Good to hear that he's okay again.

One thing though he's not the only one that needs a break, you need one too kiddo.

You're good people Kathleen, good people. I'm proud to call you friend.

Kathleen C
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kimmyk's Avatargold

Oh dear... it's so hard when you have someone in the hospital. Glad he's doing better and you can sleep in your own bed tonight.  Take care Kathleen, and get some rest.

Kathleen C
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jdowney9000's Avatar

Thanks for checking in!!!

Kathleen C
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dljinnovations's Avatargold

Thanks for the update Kathleen.  Continued prayers for both of you.

Kathleen C
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inovate's Avataree_badge

What everyone said Kathleen, and glad you dad made it thru another trying time.

PS Thanks for checking in as we all missed you. Heck, I thought I might have to enroll in the Tomnod class and send a search and recue for you;)

Kim L
Kathleen C
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kdc's Avatar

Thanks everyone. Charlie, I am happy to say, I aced my first test.  And I've also brought mt EN password with me so I can sign on while I'm here with my Dad. I asked him if he wanted to play cards or anything, but he said no...I really want to get him interested in doing something. But, I understand if he just wants to rest for awhile.  And that is the time I use to be here or play a few games myself. They will be bringing his dinner soon, and after his speech/swallow therapist was in today....we had a long discussing on how I can help him with therapy while he is eating...to make sure he swallows each bite twice and takes a drink after every two bites.

Kathy Day
Derrick James
Jill Kelly
Charlie Lumsden
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jalyia's Avatarg8_badge

I am putting in a prayer for you and your Dad. I have been through it and my heart is with you.

Kathleen C
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kdc's Avatar

My Dad got a little Valentine's Day card from the woman in room 407...LOL...it was one of those little ones we used to
get and hand out when we were in grade school. Her daughter came to the room today and gave it to him.
I hung it up for him. I asked him if he was going to go to a Valentine's dance and he said, 'Yeah, I'm going to do the Charleston'.

I'm gonna have to check out this mystery woman in 407!

Kim L
Kathy Day
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letm31n's Avatar

That's great Kathleen! Sounds like Dad has got himself a Valentine *grins*

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kdc's Avatar

I know...I didn't even get a Valentine! 


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inovate's Avataree_badge

I don't know about that yet Kathleen.

 Happy Valentines, Ladies of Edison Nation, as well as dudes that got in touch with their feminine side. And the others

Kim L
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rockwayheath63's Avatar

Charlie, I got my phlegm'inum side under control with NeilMed Sinus Rinse squirt bottle. Boiled water with a little sea salt and BAM!!

I HeArT that thing! 

Kim L
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inovate's Avataree_badge

Nice David I'm three quarters give or take a couple quarters of sea salt water

David Heath
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williamj's Avatargold

HAPPY VALENTINE'S DAY LADIES of EdisonNation !!!

(I had to do it... I think Kathleen would have smacked me in the back of the head if I didn't.)  ;  )

David Heath
Kim L
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kdc's Avatar

I was just getting ready to, William!!!

Thank you!

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kimmyk's Avatargold

Thanks William and Charlie, and Kathleen!

David, you're a nut!  lol

David Heath
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rockwayheath63's Avatar

Kim,

 They caLLLL me... "mr nutty buddy" 

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kdc's Avatar

My Dad has been showing a lot of improvement with his therapies!  BUT...today, he was taken to the ER around 3:30 pm. When he used the bedpan, the nurse found a lot of blood in it and a large blood clot. When we got to the hospital, they ran some scans but didn't find anything and he had a bowel movement while he was there, but there wasn't a lot of blood then, the doctor said there was just a little bit on the stool. They gave him an antibiotic IV and said he can be released back to the rehab because they can do an Upper GI there and if he stayed at the hospital with his history of pneumonia, he would run the risk of catching something from other people in the hospital. They said the rehab is a controlled environment. So, we got him back to rehab about 11:00pm and I made sure he was settled for the night. I hated leaving him, but if he was staying at the hospital, I would have stayed. He was joking with the nurse when he got back, so I know he's feeling ok.  I hope they keep checking in on him during the night. I wish I could have stayed with him, but they don't allow visitors after 9pm. They let me in because he was being returned from the hospital. I probably should have asked them anyway.

I went to visit him at 11:30 this morning so I can be there when he had lunch. About 3 o'clock when he said he needed the bedpan, I rang for the nurse. Then I told him I was going to go to the bank, which is right across the street from the rehab and to stay out of trouble! I told him I'd be right back. FIFTEEN minutes later when I came back, the nurse caught me as I was just going into his room and told me she had just called my home phone (I guess she thought I went home) and left a message because they called 911 for my Dad. FIFTEEN MINUTES...that fast! I never leave there during the day once I'm there..but, today I did.

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kimmyk's Avatargold

Oh my goodness!  The poor guy is really having a hard time right now. Prayers for you both. Take care and let us know how he's doing.

Kathleen C
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williamj's Avatargold

Kathleen, all my best wishes, hopes and prayers continue to go out to you and your dad. Just don't forget that you need taking care of too.

David .
Kathleen C
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keeztan's Avatargold

Prayers for your Dad and You. Apparently he knows he has a great daughter.

Kathleen C
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sunto's Avatar

sorry to hear your still on this roller coaster ride I know your not in a happy place at the moment all I can do is send my best wishes from across the pond . 

Kathleen C
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betzy's Avatarg8_badge

Love you Kathleen and am keeping you and your daddy in my prayers.

Kathleen C
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dljinnovations's Avatargold

Continuing to pray here as well Kathleen.  I know you want to be there every minute, but don't beat yourself up if you can't.  I'm sure he absolutely appreciates all the time you are able to spend with him.  All the best.

Kathleen C
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coolschool's Avatar

Positive thoughts and prayers for you and your dad, Kathleen!

Kathleen C
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allig's Avatarg8_badge

oh my goodness!  Did they take him back to the ER when they left the message for you?

Kathleen C
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kdc's Avatar

Thank you, everyone.  Alli, the person who left the message didn't know  I was there and just left to go across the street to the bank and was returning back. She must have thought she could reach me at home, but since I came right back, she told me she had just left the message and to ignore it when I go home. I was back before they took him, once they got here, I just drove across the street to the hospital and was there when they brought my Dad in.

Alli G
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kimmyk's Avatargold

How's he doing today Kathleen?

Kathleen C
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kdc's Avatar

He seemed pretty good. He said he didn't have any pain or anything. They scheduled him for the upper GI for March 3rd at the hospital. My sister came in yesterday from PA and got to spend some time with him today. She came into town yesterday, but by the time she got here they had taken him to the ER, so she only got to see him for a short time yesterday at the ER. She will be in until Sunday. So, he was happy to see her. He's gotten into the habit of taking off that oxygen tube. I have to keep putting it back on him. I know he hates it, but he has to have it.  I think they have his oxygen lowered now to 1 instead of 4 like he used to have. So, hopefully, if he can keep his oxygen level up, maybe he won't need the oxygen on him all the time. He's had it on him since he first went to the hospital on November 29th. 

I got him a Rubik's Cube to keep his hands busy, so he does play with that a lot and I thought it would be a way that I can get him to exercise his hands more.  I also ordered this for him, it just came today so I will be taking it to him tomorrow.

http://www.amazon.com/gp/product/B00KH6GVXC?psc=1&...

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kdc's Avatar

We are back in the Critcal Care unit. I got a call from the rehab about nine this morning. They said his blood pressure and oxygen level was low. They were going to give him some IV. When I got there, he was up sitting in the chair, playing with his Rubiks' Cube that I bought him. They had him on an IV to see if they could bring his blood pressure back up. They did a chest X-ray and some blood work. About three o'clock, after they checked the results, they said the Doctor wanted to send him to the hospital...which is right across the street.  

After they got him settled in the ER, they told me I could go in to see him...in trauma! When I walked in and realized they had him in a room labeled, "Major Trauma", my entire body just went numb and my legs felt like rubber. I didn't know why they had him there instead of the ER. They had the curtain pulled across the door and they told me to wait there until they were finished in there.  When one of the nurses came out she said it will be just a few minutes. I asked her why he was in the Trauma unit and not the ER. She said he is just there because there weren't any available rooms in the ER.

He is in his room now, in the critical care unit, relaxing. The Doctor said his pnemonia kicked up again, and he is concerned about his low blood pressure. They will be giving him his breathing treatments every four hours and we will find out more tomorrow. 

I have the chair and a pillow here to stay with him while he is here. The Doctor said he will be here for a few days.

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williamj's Avatargold

Dam that was scary Kathleen !

I'm glad that it wasn't as serious as the imagination could have made it. Scary stuff kiddo, scary stuff.

Still thinking good stuff for you and your dad. Don't forget to take care of yourself too.

Kathleen C
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kimmyk's Avatargold

Sorry to laugh, but as a nurse... well, whacky things happen.  Like, we were actually so full one night at the hospital there was a little lady in a bed in a closet when I came on!  That was epic.  She was so sweet, she didn't seem to care as long as we checked on her.  That certainly couldn't happen nowadays though...

Glad he's better.  Did they figure out where the blood was coming from? Seems like you said he had a scope. GI bleeds are sometimes hard to find and treat. Hang in there Kathleen.  I'm glad your sister came in; too bad she couldn't stay longer.  Alright, let us know, and sleep tight.

Alli G
Kathleen C
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kdc's Avatar

They have him scheduled for the third for the upper GI. I'm thinking they might just do it while he is here if they feel he will be able to have it done.

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kimmyk's Avatargold

Ok, weird... so did you see my post?  Cuz I can't see it now, but it was there before.  lol  Wth??

And, there it is again now!  They're working my last brain cell here!  ;p

Kathleen C
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allig's Avatarg8_badge

Praying for calm and peace!  He seems to be handling it all like a trooper!

Kim L, I'll be needing some pointers from you in the future!

Kathleen C
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enigmamusement's Avatargold

The human brain is the computer control center and if it lacks a certain nutrient or lacks energy from low sugar, it can send a negative chain reaction to vital organs that could shutdown one or more organs. All the best with natural foods like herbs, in my experience - mixed dried herbs, wholemeal bread and parsley in chicken meat soup, and barn-laid chicken eggs as well, besides glasses of cool-icecubed vitamin C-rich fruitjuice with filtered tapwater ::

Kathleen C
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kdc's Avatar

Arthur, Yesterday I just bought some flax seed oil to make Quark Cheese with Flax Seed Oil. I've read a lot about it.

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magurn's Avatar

Continued thoughts and prayers are with you Kathleen!

Kathleen C
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kdc's Avatar

The nurse just told me if they can't get his blood pressure up, his organs will start to shut down. PLEASE keep  praying for him. They just gave him some straight iron to try and build up his blood and they changed some of the medications in his IVs.

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williamj's Avatargold

Sending good thoughts, well wishes and prayers and hugs your way.

(((((((((( Kathleen and Dad ))))))))))

Kathleen C
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jdowney9000's Avatar

Tell him to breath. Gotta get oxygen to those organs. Organs are important. Talk to him Kathleen.

Kathleen C
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dljinnovations's Avatargold

Praying for you and your Dad Kathleen. 

Kathleen C
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inovate's Avataree_badge

Kathleen, I certainly hope the doctors can get everything figured out soon. This is one heck of a rollercoster ride you and you dad have been on. May he regain his health soon my friend.

David .
Kathleen C
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